Making a difference for Children with Cardiac Devices

 

Our youngest son Max was born in 1995 with multiple heart defects. In his 20 years he has had numerous surgeries and is strong vibrant young man getting ready to start his Junior year in college. In 2007 he received a ICD (implantable cardioverter-defibrillator (ICD). ). It is a small battery-powered electrical impulse generator that is implanted in patients who are at risk of sudden cardiac death due to ventricular fibrillation and ventricular tachycardia. The device is programmed to detect cardiac arrhythmia and correct it by delivering a jolt of electricity.

The Medical community has made huge advancements in treating heart defects, but what these kids need is help with all the emotional issues that go along with living with a life threatening health condition.

 THE CHICAGOLAND CARDIAC CONNECTIONS, was formed 4 years ago by a small group of children who are patients of Ann & Robert H. Lurie Children's Hospital of Chicago and their parents who want to help other children and their families deal with living with a Cardiac Device.

The goal is to give these families the knowledge they need to live everyday with cardiac devices, to give them the opportunity to meet other kids with the same issues and how to deal with the psychological and emotional issues they have to face. 

Knowledge is the key.  With your help we would like to help those who could use this knowledge as guidance in caring for themselves or others with implanted devices.  Please join us in establishing our goal to raise money for Chicagoland Cardiac Connections to host our 4th Annual support and education event Heart to Heart Day on September 18, 2016.   Any donation you could afford would help our cause tremendously.

Thank you,

Sue & Toby Koth

 

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