Move for the Kids 2018

Strong Like Kate

Kate's journey with Opsoclonus Myoclonus began back in October 2016. We noticed that our little girl was having trouble walking straight and was falling a lot. Her legs were spread wide when she walked and she had a tremor in her hands that made it difficult for her to eat. Kate was admitted to a PICU in mid October for an MRI as doctos feared she had a brain tumor. The scans and tests all came back normal and Kate was given the diagnosis of Acute Cerebellar Ataxia and we were told she would get better on her own in 3-8 weeks.

As time passed, we noticed Kate's condition was getting worse. We noticed she had irregular eye movements, she was more irritable than she had been and she started having trouble sleeping. Kate was admitted to the hospital again in late December 2016 for another set of MRIs, spinal tap and more tests. Again, everything was normal in her tests and we left the hospital with an unchanged diagnosis and were told she just needed more time to get better.

Unfortunately, Kate's condition continued to deteroriate and we knew something was not right. By the beginning of February 2017, Kate's symptoms were getting worse by the day. That's when we were told about Ann & Robert H. Lurie Children's Hospital. We started working to get records transferred and get her scheduled for an appointment. On Super Bowl Sunday 2017, Kate woke up from a nap and her ataxia had noticeably worsened. She could not walk, stand, crawl or even sit unsupported. We loaded Kate and her baby brother into our car and headed for Lurie's Emergency Room. 

The next morning, Kate had her correct diagnosis: Opsoclonus Myoclonus Syndrome. She had more scans and more tests and treatment started the next day. Kate started an aggressive treatment regime that has included high dose steroids, IV Immunoglobulins, and low-dose chemotherapy. We saw improvement in Kate's OMS symptoms after her first round of steroids and IVIG. We believe that the doctors and nurses at Lurie's saved Kate's life. 

Today, Kate's treatment continues, but you wouldn't know that a year ago she could not walk without falling on her face. We are beyond thankful for Lurie Children's Hospital and we are honored to be a part of this incredible event. What better way to show off Kate's renewed ability to walk and run than a 5k?! Please help us in supporting Lurie Children's Hospital. If you can make it to the event, join Kate's team and come walk/run with us! If you're able, please help us help kids like Kate by making a donation to Lurie's in Kate's honor. Help Kate's team grow by sharing this team page, everyone is welcome to join!

 

Thank you, from the bottom of our hearts.

Copy and paste this link to watch a video of Kate's journey:

https://www.youtube.com/watch?v=LoDR8ngX-x4

 

 

Make a difference in the lives of nearly 200,000 patients treated at Ann & Robert H. Lurie Children’s Hospital of Chicago! Support our team's efforts for the 2018 Move for the Kids 5K Walk/Run by making a gift today. Every dollar raised means a brighter and healthier future for our children.

Here are just a few ways your donations could help:

$35 can provide a comfort item for a premature infant to ensure the smallest and most fragile babies heal and grow faster.

$60 can help provide inpatient entertainment and distractions to help patients reduce stress and have fun while undergoing treatment.

$120 can help provide small lab supplies for one of the hospital's clinical trials to ensure our children have access to the latest treatments and therapies.

$240 can help provide supplies for the Lurie Children's classroom so that children in the hospital can continue their education.

All donations are tax-deductible and will be acknowledged by Lurie Children's Foundation.

On behalf of the patients and families of Lurie Children's, thank you for your support!

Strong Like Kate - Join Team Raised
Teresa Gulo $50.00
Kenneth Gulo $50.00
Jason Gulo $0.00
Jay Gulo $0.00
$300 Milestone Kate Gulo $350.00
Kathy Gulo $0.00
Brayden Hibbard $0.00
Cayla Hibbard $0.00
Hailey Hibbard $0.00
Nathan Hibbard $0.00
Jamie Mette $0.00
Nathan Mette $0.00
Payton Mette $0.00
Taylor Mette $0.00
Dominic Rossi $0.00
Louis Rossi $0.00
Marilyn Rossi $0.00
Samantha Rossi $0.00
Team Gifts $60.00
Denotes a Team Captain