Why We Move
Each year, we move for the patients treated at Ann & Robert H. Lurie Children’s Hospital of Chicago. The challenges our kids have bravely faced in their young lives is more than many of us will experience in a lifetime. Move for the Kids is our chance to give back and promise them a chance at a brighter future.
Meet a few of the kids you are helping through your fundraising efforts.
2017 Move for the Kids 5K Walk/Run patient champion
It was during “tummy time” when Angel Bejarano noticed his baby boy Miles’ lips were turning blue and he was having difficulty breathing. Roxanne, Miles’ mom, immediately called 911.
“When the paramedics got there, Miles was no longer blue and was acting normally,” says Roxanne. “So the paramedics gave us a choice: they could give him oxygen or they could take him to Lurie Children’s Emergency Department. We chose to have Miles taken to Lurie Children’s, and we are so glad we did.”
In Lurie Children’s ED, Miles underwent a variety of tests. The results were a shock to Roxanne and Angel: Miles was in heart failure.
Miles’ diagnosis was dilated cardiomyopathy, a disease of the heart muscles, and his heart function was measured at only 11 percent of normal.
“We were told Miles was in critical condition, and that the only way he would survive would be to have a heart transplant,” says Roxanne. “Miles didn’t have the usual symptoms of a baby with heart failure, so that trip to the ED was really a blessing in disguise.”
Miles’ medical team at Lurie Children’s Heart Center believed his heart condition was congenital, and had been gradually getting worse. Roxanne says she was told that if Miles hadn’t been diagnosed when he was, he may have eventually suffered a stroke or died of Sudden Infant Death Syndrome (SIDS).
On March 29, 2014, when Miles was 4 months old, his parents were notified that a donor heart was available. Miles underwent transplant surgery the following day, surgery that lasted six hours.
“When we saw him later that day, Miles already looked so much healthier,” says Roxanne. “Instead of blue, he was pink in color. His doctors and nurses all said Miles was a ‘rock star!’”
Today, Roxanne and Angel consider Miles, now age 3, their “miracle child,” and are honored that Miles was chosen as this year’s Move for the Kids patient champion.
“We are ‘frequent flyers’ at Lurie Children’s, and are so grateful for the amazing care Miles has received,” says Roxanne, a member of the hospital’s Family Advisory Board. “We are proud to support the hospital that saved our son’s life by sharing our story and participating in this special event!”